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A Fibromyalgia / Chronic Fatigue Syndrome Sufferer from the U.S. - Judith's Story

by Judith Chase
(Santa Fe, NM, U.S.A.)

Judith, Fibromyalgia / Chronic Fatigue Syndrome Sufferer

Judith, Fibromyalgia / Chronic Fatigue Syndrome Sufferer

I was diagnosed with Chronic Fatigue Syndrome (what they call it in the U.S) and Fibromyalgia about 11 years ago, but I know I've had it much longer than that. I was also diagnosed about the same time with Bipolar Disorder (BPD). Interestingly enough, research has shown that the two could be connected, which I had long suspected. I have met many women with both / all of these conditions.


I hope the U.S. will change the name and begin to call 'Chronic Fatigue Syndrome', Myalgic Encephalomyelitis instead.


I had a bad experience with one rheumatologist who ridiculed me and was very rude to me. I filed a complaint about him with the Medical Examiner's Board and he was made aware that he cannot treat patients badly. I never went back to him. I found out that this doctor did this to everyone and has even made men cry. He still behaves the same. Thankfully, I now depend on the excellent doctors at my clinic.


I am very stable at the present time. Ever since I was diagnosed I've been taking Plaquenil and Sulfasalazine for Fibromyalgia / Chronic Fatigue Syndrome. One of my problems is Irritable Bowel Syndrome (IBS) and I am still hoping I can rid myself of that awful problem. I take a mood stabilizer and an anti-depressant for the Bipolar Disorder, as well. Recently, I was diagnosed with an underactive thyroid, which I take medication for every morning when I get up. I must wait an hour before I can have coffee or breakfast. No problems, and my energy is returning. :-)


The biggest, most important development for me, is that I have started taking the newly approved (by the FDA) drug for Fibromyalgia, called LYRICA. I am feeling even better since starting it. This is wonderful! I would recommend Lyrica to anyone!! I have no side effects at all. I realize that not everyone can take it, but at least give it a try if you can.


I now see a whole new life ahead of me.

Comments for
A Fibromyalgia / Chronic Fatigue Syndrome Sufferer from the U.S. - Judith's Story

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Dealing with Fibromyalgia & Cronic Fatigue
by: Leslie Ann

Hi, I was diagnosed about 4 or 5 years ago, but before they figured it out, I was & still am on anti-depressants. I live in Quebec,Canada and when I told my doctor about the severe pain and sleepiness, he put me on Lyrica, 50mg. once a day in the morning.

All it did for me was make me sleep and the rest of the time I felt as if my body was slightly beside itself, kinda of hard to explain, sorry.

I went back to my doctor and told him. He took me off it and put me on Codeine Contin 50mg, 3 times a day. Luckily I don't have the side effects expected from this as it is a narcotic. I have no drowsiness. On the contrary I get hyper-active, so to off set the hyper-activity I take PMS-Clonazepam, 1mg along with the Codien Contin. Luckily I have a high tolerance and have not become addicted to this medicine.

I've been on this for a while now. I've found that some days I don't even need to take any. So for anyone else here in Quebec, taking Lyrica and finding it's not working, or hampering your lifetyle I recommend seeing your doctor and asking about Codiene Contin.

I have one question though, I've never heard of any men having Fibromyalgia, has anyone else?

Bi Polar in some cases of Chronic Fatigue Syndrome and Fibromyalgia?
by: annie uk

Hi Judith.

That is strange - before I got my diagnosis of Chronic Fatigue Syndrome, I was convinced that I was bi-polar. It wasn't so much the mood swings, but the awful energy surges which were guaranteed to trigger off energy dips and crazy sleep patterns. So it would seem that bi polar symptoms can appear in some cases of Chronic Fatigue Syndrome and Fibromyalgia.

Wishing you all the best!

Good Article
by: Ricci

Yeah Judith. Just started thyroid myself. Didn't know about the 1 hour without coffee, but I did know about the food time. Do you know why?

Article so clear, distinct, and informative.

Good for you!

Interesting Feedback About Lyrica For Fibromyalgia
by: Sleepydust

Thanks so much for sharing your story about living with Chronic Fatigue Syndrome, Fibromyalgia, and Bipolar Disorder.

You are the first person on Sleepydust to share their experiences about using Lyrica for Fibromyalgia! Great news that it's working so well for you! If you'd be willing to expand on your experiences, we'd love to hear more about your experiences with Lyrica here...

Thanks again for sharing your story with us Judith!

Wishing you a speedy recovery

Claire
Sleepydust

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