Chronic Fatigue Immune Deficiency Syndrome Sufferer - Natasha's Story, Wales
I have Chronic Fatigue Immune Deficiency Syndrome and I have been diagnosed with an auto-immune disease, for about five years now. Although I was prescribed various medication for the auto-immune disease, I have honeslty never felt 'right'. Over the past two years, I have had to deal with new symptoms, one after the other. And I have been putting up with the debilitating fatigue.
Unfortunately, every GP (doctor) and specialist I have seen, have not been very sympathetic, and have put all symptoms down to my auto-immune problem.
I have good days - I know I shouldn't complain that much, as I know there are those who suffer much more. But on my bad days, I struggle to get up and down the stairs. I physically throb with pain and stiffness, from head to foot. I suffer painful spasms in my hands and feet. I suffer with terrible Irritable Bowel Syndrome symptoms, dizzy spells, headaches, the list is endless.
I am a nurse and I struggle to go to work. I am currently working full time, as financially I need to. I have to travel a lot, which some days I find exhausting. I want to enjoy my life, and yet here I am, at 28, and feeling like an old woman. I try to make sure I rest during evenings and weekends, but then I feel that I am being a burden to my partner, who, naturally wants to go out and do normal things during our spare time.
I have tried to lose weight, and have done, but it is very slow. The problem is, due to my low metabolism, I need to go mad with the exercise
to lose anything. But then I find I am tiring myself out too much. So then I cut back with the exercise, and then my weight goes back up... I feel that it is a never ending process, trying to get a balance.
I have recently started to take fiber supplements and probiotic supplements. I have had to find them in tablet form, as I cannot have dairy products
(so Yakult drinks are a no go.) Since taking these, my Irritable Bowel Syndrome (IBS) symptoms have relaxed a little, and so I am very pleased with this. I am trying to have daily glucosamine, and Eye-Q, to help with the joint pain.
As I mentioned earlier, I am a nurse, and so am wary of medication, such as anti-depressants
and morphine type pain killers. I try and get by on Parecetomol and Ibuprofen, but some days these are ineffective.
I suppose that Chronic Fatigue Immune Deficiency Syndrome is a long term problem, and I know it can come and go. But I really am at the end of my tether now, and would appreciate any tips on how to manage Chronic Fatigue Immune Deficiency Syndrome
, and how to get my GP to listen.