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Coping With ME / Chronic Fatigue Syndrome - Doing Something You Love - Debbie's Tale

by Debbie Brown
(Somerset., in the west country of England.)

I am 38 years old and have had ME / Chronic Fatigue Syndrome for quite a while now. It all started about 3 years ago when I got the flu. I don't think I ever got over it properly because I always felt quite tired after that.

Two years ago, I got the mumps. Three months after it had developed, I was still dead on my feet (or flat on my back).

After many blood tests the doctors and specialist said that I must have Myalgic Encephalomyelitis (M.E.) or Chronic Fatigue Syndrome.

I've been pretty much housebound for the last 2 years. I can now manage to get out of bed after lunch most days and get up and properly dressed about 4 days a week. I've got to the stage now where I can even do a little housework (I never thought i'd be happy to do housework).

I also go on a jewellery making course for 2 hours on a Tuesday evening. It makes me very tired for the next day or 2 but it is so worth it.

I think the key to getting better is to relax and accept that you have a chronic illness. I think you must rest much more than you think you need, but I also think you should push yourself a little tiny bit every now and again.

I like to make jewellery when I'm in bed in the mornings, only for an hour and then I close my eyes and have a rest. Some days it can totally tire me out but I think I need the exercise (if you can call being propped up in bed playing with beads exercise). Other days I can easily do the hour but I try not to do more because I know I still need the rest.

I think everyone should find something they like to do, whether they have M.E. or not. When you find a hobby you love, it can become a therapy for you. It could be something physical or something spiritual but when you find what it is, that thing becomes important to your healing. I know it has been that way for me.

I also now know that if I never get any better than I am right now, that is ok. I am fine the way I am. I would love to be 100% better but it doesn't matter if I don't get there.

I wish that everyone with a chronic illness could feel that way.

Of course I still have my bad days and sad days but I think it is healthy to have them sometimes.
I hope that someone reading this can gain a little peace of mind and acceptance the same way that I did reading other peoples stories.

Peace and love to everyone

Debbie xXx.

Comments for
Coping With ME / Chronic Fatigue Syndrome - Doing Something You Love - Debbie's Tale

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Positive Attitude
by: Jill

I have just read Debbies story and I totally agree with her. I have had M.E since I was 15 and I am now 29.I feel for me it has been my faith that has helped me to keep a positive attitude to my limitations. Like Debbie said having something to break the monotony of the illness makes all the difference.

Love
Jill

Finding Joy When You Have M.E. / Chronic Fatigue Syndrome
by: Sleepydust

I'm so glad you raised this Debbie. It is known that positive, joyful experiences are very important when you have a chronic illness. Having M.E. / Chronic Fatigue Syndrome is no exception.

Finding something you like, or better yet, love to do, is perhaps one of the best things you could do to help improve your quality of life when you have such a devastating illness.

It could be reading, drawing, writing, watching films, cooking, or spending time with pets. Or if you feel more energetic it could involve going for walks, fishing, yoga, playing a musical instrument - whatever fills you with joy, where time flies. Everyone's different.

When you feel this ill and weak, and you do something you really enjoy, you can really feel the benefit so long as it's something that's fun for you, and within your capabilities.

Thanks for sharing Debbie. A great insight.

All the best

Claire
Sleepydust

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