Lillyann's Fibromyalgia Story - Living with an Invisible Illness, Hitting Rock Bottom & Finding Inner Peace
My experiences of living with Fibromyalgia and what I have learned...
"One word" said my doctor following a follow up appointment, so I think the obvious. Its amazing how much information can rush through your brain in a few seconds.
"You have Fibromyalgia"
Immediate relief (that it isn't what I thought he was going to say). Followed by frustration at not knowing what this word meant...
I'd always been pretty good at self diagnosing up to that point. Now I am feeling angry because I know immediately how I got it too.
My doctor tells me there is no cure and advises me to go home and find out as much as I possibly can about it, which of course, I do. Wow - its like finding the last peace of the jigsaw that you've so been desperate to complete. Feelings are mixed - relief that your illness has a name, and the fact you cannot die from it. But nobody can see it and nobody can feel it. Every person with Fibromyalgia feels differently - it is a very unique illness.
KNOWLEDGE IS POWER.
It is so very important to find out as much as you possibly can about your illness. Use the search engines and tap in absolutely anything you want to know. Also, the local library has a wealth of information. If you see a book on the internet that you feel would be of help to you, contact the library and if they haven't got it, for a small charge, they will order it for you.
In my opinion, the only people who truly understand what you are going through are those that have Fibromyalgia too, so I believe that it is vital that you keep in touch with fellow Fibromyalgia sufferers and join local support groups where possible. There are lots of forums on the internet with fantastic people on. You will meet the best people ever. They will make you laugh till you cry and vice versa.
You need them more than ever now. But Fibromyalgia is life changing, not just for you, but for your family too. Again, the internet has tons of information specifically for families living with Fibromyalgia.
Time to take care of No 1 from now on. Learn to know your limitations. It will take time to realise them but, in time you will begin to recognise the warning signs and act on them.
LAST BUT NOT LEAST...
Once you have got over the initial shock and trauma (and believe me I have been to the bottom of that black hole many times), you will find inner peace and appreciate what life really is all about and eventually begin to enjoy the journey more than you ever did before.
Life will never be the same again, but its up to you to make it even better than it was.