An Anonymous ME/ Chronic Fatigue Syndrome &
Fibromyalgia Sufferer's Story, UK
I would describe living with ME/ Chronic Fatigue Syndrome and Fibromyalgia
like being locked up...
You don't know how long the sentence is.
And you don't know when some one will come and let you free.
I've had ME/ Chronic Fatigue Syndrome and Fibromyalgia for less
that 3 years. It all started with a flu type virus. No one else
in the family got it.
A week later, I went back to work but I had to have another week
off because I didn't feel well. I returned to work again, but I
was still feeling unwell. I kept pushing myself at work, and I rested
as much as possible I when I was at home, falling into bed as soon
as I got in.
This went on for a year. I gradually became
depressed from feeling so fatigued all the time. I was eventually
persuaded to see a doctor but by that time my emotions were totally
out of control and I simply could not cope
with the simplest of things.
My doctor did blood tests and found nothing wrong, which made me
feel worse. I hate wasting doctors' time. I was eventually diagnosed
with Chronic Fatigue Syndrome and Fibromyalgia.
I'm trying to accept my doctor's diagnosis
of Chronic Fatigue Syndrome and Fibromyalgia
but it's difficult. I am trying to pace myself too. I have tried
antidepressants, which helped with the depression side of it, but
not the fatigue, the muscle
and joint pain, the tender glands and the recurrent
I think that Chronic Fatigue Syndrome and Fibromyalgia is one of
the most difficult long term illnesses to live with. I know that
there are people out there, who have had
it for decades and my heart goes out to them. At one time
I would have been one of the people on the outside, trying to understand
how they feel.
Now I know.
Thank you, for sharing your story with us.
Why not tell us about YOUR story
and experiences? Click
here to share your story...
Back to top