An Anonymous Chronic Fatigue Syndrome & Fibromyalgia
Sufferer's Story, UK
I've had Chronic Fatigue Syndrome for less than 3 years. It's like
being in prison but in your own body. Here's my story...
I saved up really hard from my sandwich year at university to go
backpacking with my boyfriend, in South America. While I was there
I caught some tummy bug and a respiratory tract infection. When
I got back, I was straight back into my final year at university.
I was getting bad diarrhoea and chest pain, so I kept visiting
my doctor for more and more tests. Meanwhile, my other Chronic
Fatigue Syndrome -like symptoms became more prevalent. But they
could find nothing and told me it would go away by itself.
After a month or so I was shaking after walking a few metres from
my bed, but somehow I was still going to lectures. I saw a different
doctor and she sent me straight to hospital with suspected malaria.
I stayed in there for a week, while they ran more tests and found
The consultant diagnosed me with Irritable Bowel Syndrome (IBS)
and discharged me, telling me to avoid fruit, vegetables and milk.
After this I ended up going to stay with my parents and at points
couldn't sit up in bed I was so weak. After a few weeks of rest
I went back to my flat and to the doctor. They told me I was just
an anxious final year student.
Hearing this my mum phoned up the doctor and got her to refer me
to the Infectious Diseases unit.
They were better and ran more tests. They eventually diagnosed
me with Chronic Fatigue Syndrome. But they gave me no idea how
to manage it.
I suspended my university course and moved in with my boyfriend
so he could care for me (as I couldn't cope). I found a
book on food intolerance and discovered through an elimination
diet that I was intolerant of gluten, lactose, maize and the onion
family. My diahorrea cleared up completely.
A year later, my boyfriend and I have our own flat near to university,
where I am managing to attend a lecture a day. I'm just about coping
thaanks to a lot of help from him.
What have I learned from this?
to your body not your head
most of the time. If you body is saying stop
I'm tired, you must listen to it, and keep within it's limits
most of the time. Don't rocket between a bouncy
Tigger and unconcious.
Keep in the middle. But just sometimes you do
need to make yourself feel better, and
if going out and having fun is
what you need to do... then do it.
Thank you, for sharing your story with us.
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